There are 8 article(s) tagged Sickle Cell Disease:
Donte Johnson, 23, of Memphis, no longer lives with chronic pain caused by sickle cell disease, thanks to the gene therapy he received as clinical trial participant at St. Jude Children’s Research Hospital.
“It really hurts when it’s somebody you think is going to at least try to understand or be empathetic … all they see is my Black face and my sickle cell,” said April Ward-McGrory. She’s had both legs amputated because of sepsis and nearly died several times from complications related to the sickle cell disease.
Memphis is a hub for sickle cell treatment, attracting researchers from across the world. Black patients with the inherited blood disorder not only face chronic pain, but trauma beyond the doctor’s office.
Boston-based Charles River Laboratories manufactures clinical and commercial cell and gene-modified cell therapies at its Shelby Drive facility.
Education about the sickle cell disease in nursing schools is limited, so the University of Tennessee Health Science Center launched Sickle Cell Nursing Boot Camp.
The story of Memphis as a hub of sickle cell disease research began in 1929, when Dr. Lemuel W. Diggs encountered the disease within a week of arriving in Memphis to join the UTHSC faculty. The city still attracts researchers and clinicians from around the world.
“We have transition tours where they meet the practitioners, social workers and all the ancillary staff and learn more about the clinic before they transition.”
Mike Conley's annual Bowl-N-Bash to raise awareness to sickle cell disease is this Saturday — the 11th and final year for the event as the former Grizzlies point guard moves on to Utah.
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